We are the Huntington's Disease Society of America, Iowa Chapter. HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today and hope for tomorrow for people with Huntington's disease and their families.
The HDSA mission:
• To help individuals affected by Huntington's Disease and their families through support and services
• To educate both the public and health care professionals about Huntington's Disease
• To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.
While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, We must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.
Contact us today
to volunteer, join a committee, participate in or coordinate a new event, become a sponsor, locate a support group or attend an Educational Event near you!
HDSA - Iowa Chapter
1824 G Ave
Essex, IA 51638
Chapter Executive Board
Chapter Board Members
University of Iowa Huntington's Disease Society of America Center of Excellence
Shawna Feely, Clinic Coordinator: firstname.lastname@example.org
Huntington's Disease Society of America Center of Excellence
University of Iowa
Iowa City, IA 52242
Toll-free: 800-777-8442 (ext. 34307)
HDSA Upper Midwest Region Contact
Nancy A. Rhodes, HDSA Director, Field Development and Operations
Phone: (212) 242-1968x234