Who We Are
Welcome to the Huntington's Disease Society of America's Iowa Chapter. We are a part of the former Upper Great Lakes Region, now known as the MidWest Region.
Our Mission
To improve the lives of everyone affected by Huntington's disease and their families.
Our Vision
A world free of Huntington's disease.
About HDSA
The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.
HDSA Centers of Excellence
The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.
At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.
For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page
Huntington's Disease Society of America Center of Excellence at the University of Iowa
Chapter LiaisonsAmy Lemke, MSW, LISW, Clinic Coordinator: amy-lemke@uiowa.edu
Website: www.medicine.uiowa.edu/psychiatry/huntingtonsdisease/
1-309 MEB
Iowa City, IA 52242
Phone: 319-353-4307
Toll-free: 800-777-8442 (ext. 34307)
Fax: 319-353-4438
Email: hdcenter@uiowa.edu
Contact Us
HDSA - Iowa ChapterPO Box 71181
Clive, IA 50325-3704
e-mail: iowa@hdsavolunteer.org
Social Worker:
Ashley Cochran
Bio: Ashley Cochran is the HDSA Iowa Chapter social worker. She has experience supporting individuals and families through grief, mental health challenges, and chronic health conditions. Prior to becoming a social worker, Ashley was a research assistant in an HD research lab.
Contact info:
Email: acochran@hdsa.org
Phone: 515-398-0760
Ask me about:
Navigating Resources
Future planning (applying for disability benefits, financial or healthcare resources, mental health services, advanced care directives, long-term care)
Meeting basic needs (housing, utilities, food)
Referrals to providers/ services
Support meetings & support groups
Research
Advocacy
Education & information
And more!
HDSA Regional Development Officers
Peggy Cribbin
PO BOX 2286
St. Louis, MO 63109
p. (314) 293-4359
pcribbin@hdsa.org
Camille Colletti
P.O. BOX 477
Mukwonago, WI 53149
P. (847) 849-0680
ccolletti@hdsa.org